PAH Empowerment

Advocating for yourself isn't always as easy as it sounds. What are some ways people living with pulmonary arterial hypertension (PAH) can bring up tough questions and help a doctor understand what's important for them? From thinking through your goals, understanding risk status, or asking about treatment options, the articles and videos below may give you some ideas on what's most important for you to bring up during your next PAH specialist appointment.

Motivation & Insights from Other Patients

Thumbnail for PAH Initiative Ambassador Peggy’s article discussing her competitive spirit with PAH

Being Proactive in the Doctor’s Office

Good doctor-patient relationships are built on mutual respect and openness. It can be hard to know how to best advocate for yourself though. Here are a few questions to consider during your next appointment.

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Thumbnail for PAH Initiative Ambassador article discussing what PAH Risk Status means to me

Thekla’s Story: Exploring Treatment Options with Her PAH Specialist

Thekla talks about how she’s proactive with her PAH specialist – discussing her PAH symptoms, setting goals, coming up with a treatment plan, and needing to make adjustments to her treatment plan over time.

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Thumbnail for PAH Initiative Ambassador article discussing self-care and healthy living with PAH

Nathan’s Story: A Proactive Approach to PAH

Everyone’s story is unique, especially when you’re living with pulmonary arterial hypertension (PAH). Nathan discusses the challenges of living with PAH, his proactive approach to living with PAH, and how he’s learned to live each day to the fullest.

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How to Set & Keep Your PAH Goals

Setting goals for your health is different than setting goals for other aspects of life. But there’s also something about goal setting that is universal- having a clear goal greatly improves the likelihood that you’ll reach it!

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Thumbnail for PAH Initiative Ambassador Karen’s article about reclaiming her body and life after a PAH diagnosis

PAH Ambassadors Share Their Goals

Sometimes, goal setting may be hard when PAH can be so unpredictable each day. It can be helpful to know what goals other patients like you have set and how they achieved them.

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Thumbnail for PAH Initiative Ambassador’s article about best tips for tracking life’s everyday obstacles

What PAH Risk Status Means to Me

How has knowing their risk status helped Lauren and Karen better understand if their treatment plan is working?

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Getting Motivated Again

Living with PAH can cause a range of emotions. See how Denise, Karen, and Lauren have found ways to stay positive and motivated.

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