Perspectives on PAH

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Hear from real people living with PAH

You are not alone! Pulmonary arterial hypertension is a rare and complex disease, but you can take comfort in knowing you are not the only one who is experiencing it. The PAH Initiative community is here to help with articles and videos featuring caregivers and real people with PAH, who share their perspectives on getting diagnosed, finding a PAH specialist, adjusting their treatment plans, and finding hope and inspiration along the way.

PAH Initiative Ambassador Lauren

Lauren, PAH Initiative Ambassador

Ambassador spotlight - Peggy

Thumbnail for PAH Initiative Ambassador Peggy’s article discussing her competitive spirit with PAH

Learn how Peggy renewed her competitive spirit after her PAH diagnosis and how she won't let an oxygen tank define her.

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What PAH risk status means to me

Thumbnail for PAH Initiative Ambassador article discussing what PAH Risk Status means to me

How has knowing their risk status helped Lauren and Karen better understand if their treatment plan is working?

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Self-Care and healthy living with PAH

Thumbnail for PAH Initiative Ambassador article discussing self-care and healthy living with PAH

Living with PAH can be a big adjustment and taking care of yourself can make a big difference. But where do you start?

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Caregiver corner - Jane

Jane, a PAH caregiver article thumbnail

Get to know Jane, who cares for a daughter living with PAH, in a conversation about balancing self-care and caregiving.

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Ambassador spotlight - Karen

Thumbnail for PAH Initiative Ambassador Karen’s article about reclaiming her body and life after a PAH diagnosis

Learn how Karen reclaimed control of her body—and life—after her PAH diagnosis in an inspiring story of perseverance.

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Advice from PAH Initiative Ambassadors

Thumbnail for PAH Initiative Ambassador’s article about best tips for tracking life’s everyday obstacles

Hear from people who’ve been there—PAH Initiative Ambassadors share their best tips for tracking life’s everyday obstacles.

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What I wish I knew about PAH

Thumbnail for PAH Initiative Ambassador Joanne’s article about what she wishes she knew about the PAH diagnosis

Laura and Joanne have come a long way since diagnosis. Listen as they share the tips they wish they could have known sooner.

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Working with a PAH expert

Thumbnail for PAH Initiative Ambassador Karen’s article discussing the importance of finding a PAH expert

Why is it important to find a PAH expert? Hear from other people with PAH as they share their thoughts on the benefits.

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Reaching out & staying connected

Thumbnail for PAH Initiative Ambassador’s article about how they stay connected with their communities after being diagnosed with PAH

You are not alone! Watch this video to find out how Denise, Karen, and Lauren stay connected with their communities.

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Getting motivated again

Thumbnail for PAH Initiative Ambassador Denise’s article about staying positive and getting motivated after being diagnosed with PAH

Living with PAH can cause a range of emotions. See how Denise, Karen, and Lauren have found ways to stay positive and motivated.

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PH Awareness Month

Thumbnail for PAH Initiative Ambassador Laura’s article discussing what PAH Awareness Month means to people with PAH

Watch this short video to find out what PH Awareness means to people with PAH who are just like you.

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