Committed to helping you navigate life with PAH

The PAH Initiative is dedicated to advancing patient care in pulmonary arterial hypertension (PAH).

This initiative reflects United Therapeutics’ commitment to providing knowledge and inspiration based on science and research in PAH today. The PAH Initiative can help you better understand what’s happening, why it’s happening, and what you and your healthcare provider can do about it.

Our hope is that you ﬁnd the support you need—when you need it—so you and your healthcare provider can make informed decisions that help you throughout your PAH journey.

Be part of the Initiative and stay connected!

Join the PAH Initiative to be among the first to learn about new educational resources, find out when PAH events are scheduled, and get inspired by others who are moving forward on their PAH journey.

Join the PAH Initiative

Questions about PAH? We have answers.

Get the answers you need for even the most challenging questions about life with PAH.

Download example risk assessment

Take this example risk assessment form to your next appointment to help guide your conversation with your healthcare provider about your risk status.

Example Risk Assessment PDF

Why you need a PAH specialist on your care team

PAH patients and PAH Initiative Ambassadors Karen, Joanne, Laura, and Denise discuss the beneﬁts of having a PAH specialist as part of their care teams.

Find a PAH Specialist

Click to expand transcript

[On Screen Text: Working with a PAH Expert. PAH Initiative - Sponsored by United Therapeutics - Committed to Improving the Lives of Patients.]

[On Screen Text: Karen PAH Initiative Ambassador]

It was a shock to have this diagnosis.

[On Screen Text: Joanne PAH Initiative Ambassador]

I learned very quickly after my diagnosis, that it was very, very important to see someone who specializes in pulmonary arterial hypertension.

[On Screen Text: Laura PAH Initiative Ambassador]

It's all confusing at first, it's scary and confusing.

I have seen in my support group, folks who want to stick to a doctor, maybe a local doctor that they know.

[On Screen Text: Denise PAH Initiative Ambassador]

This disease is so rare that every doctor may not know about it.

Even though you're comfortable with that doctor, it's important to find someone who specializes in this field because that person is going to have all of the knowledge that you are going to need.

I really think that you need to see a PAH specialist because a PAH specialist is going to have a lot more dedicated knowledge to the PAH world.

I would encourage others to go ahead and do their homework on this disease.

I walk in every appointment, I have my notes, I have my questions already written down.

I'm fighting for my life, and so when I'm in the doctor's office, I have to be selfish.

I fully take the lead and I will tell the doctor how I'm doing or what I've been doing.

Some doctors are great with helping you connect with support groups or helping you connect with someone who does have PAH.

If I have a question, I can call the main nurse of the department and they'll call me back within a day.

We have an app through the hospital. We communicate through email a lot, and we also have Facebook friends with my nurse. So, we are able to communicate in a lot of different ways nowadays.

And I have been incredibly fortunate to be under their care.

[On Screen Text: PAH Initiative - Sponsored by United Therapeutics - Committed to Improving the Lives of Patients. For more resources about PAH, please visit www.PAHInitiative.com]

PAH Oxygen 101: A beginner’s guide to oxygen

What is the role of oxygen therapy in treating people living with PAH? This article explains why someone with PAH might need oxygen therapy and considerations to discuss with your doctor to ﬁnd the right system for you.

PAH Oxygen 101

Oxygen 101: A Beginner’s Guide to Oxygen article thumbnail

Breathe Easier: Tips for living with oxygen therapy

Navigating life with oxygen therapy can be challenging. Learn more about integrating oxygen therapy into your daily life—from your day-to-day routine-to special circumstances like travel.

Oxygen Therapy for PAH