PAH Initiative Ambassadors are patients living with PAH or are caregivers, and they were compensated for their time.

Committed to helping you navigate life with PAH

The PAH Initiative is dedicated to advancing patient care in pulmonary arterial hypertension (PAH).

This initiative reflects United Therapeutics’ commitment to providing knowledge and inspiration based on science and research in PAH today. The PAH Initiative can help you better understand what’s happening, why it’s happening, and what you and your healthcare provider can do about it.

Our hope is that you ﬁnd the support you need—when you need it—so you and your healthcare provider can make informed decisions that help you throughout your PAH journey.

Be part of the Initiative and stay connected!

Join the PAH Initiative to be among the first to learn about new educational resources, find out when PAH events are scheduled, and get inspired by others who are moving forward on their PAH journey.

Join the PAH Initiative

Questions about PAH? We have answers.

Get the answers you need for even the most challenging questions about life with PAH.

How does PAH affect my body?

What Is PAH?

What is the life expectancy of someone with PAH?

PAH Life Expectancy

What treatment options are available for PAH?

Types of PAH Treatments

“I don’t want people to live in fear. Just because you’ve been diagnosed with PAH, you don’t have to stop living your best life.” —Julia, PAH Initiative Patient Ambassador

Julia, PAH Initiative Patient Ambassador

BREATHING ROOM

The Role of Oxygen in Pulmonary Arterial Hypertension

Living with PAH often requires learning to adapt, and oxygen therapy can be an important tool in your care plan. This PAH Today broadcast covers the oxygen essentials—how your body gets and uses oxygen, the types of therapy available, tips for adapting to treatment, and how to stay active—so you can feel empowered in your care.

Wednesday,
September 30

7–8 PM EST

Thursday,
October 8

8–9 PM EST

LEARN MORE & REGISTER

DR. LANA MELENDRES-GROVES, Nationally recognized PAH expert

The “Inside Story”: What would your body tell you about your PAH if it could?

Watch the recording from the PAH Today National Broadcast as PAH expert Dr. Lana Melendres-Groves discusses how your body's "inside story" helps you and your specialist catch vital changes early.

WATCH THE RECORDING

Download Example Risk Assessment

Take this example risk assessment form to your next appointment to help guide your conversation with your healthcare provider about your risk status.

Example Risk Assessment PDF

Living With PAH

Resources for everyday life

The PAH Initiative provides a variety of resources to support you, from nutrition and fitness tips to patient stories and self-care strategies. Visit our Living With PAH section to hear real-life experiences from patients like you.

Living With PAH

Get social with the PAH Initiative

See what people are saying about life with PAH. Connect with us on Instagram and Facebook for more stories, information, and inspiration.

Where knowledge meets inspiration

Committed to helping you navigate life with PAH

Be part of the Initiative and stay connected!

Questions about PAH? We have answers.

How does PAH affect my body?

What is the life expectancy of someone with PAH?

What treatment options are available for PAH?

The “Inside Story”: What would your body tell you about your PAH if it could?

Download Example Risk Assessment

Living With PAH

Resources for everyday life

Get social with the PAH Initiative

Join the initiative!