Living with pulmonary arterial hypertension takes strength, courage, and lots of motivation. The PAH Initiative is here to help with useful information and resources for living with PAH that you can use every day.
Find out which foods and drinks could help or do harm, make lifestyle changes you can commit to, plus exercise videos for people with PAH.
With PAH, taking the first step toward movement can be challenging. Discover how cardiopulmonary rehab helped Gwen and Thekla stay active safely.
Cardiopulmonary Rehab for Pulmonary
Which foods are good for you? Can certain foods make your PAH worse? The answer may surprise you! Check out this article to find out which foods are better for PAH and which foods you should avoid.
PAH and Diet ⟩
Wondering about the cause of swollen ankles or the connection between fluid retention and salt? Read this article to learn the science behind how sodium and diet affect people with PAH.
PAH and Sodium ⟩Hear from other people living with PAH as they tell their stories and share their thoughts, lessons learned, and what inspires them to keep going.
Life can take surprising turns, but staying informed and speaking up can help you stay on your path. See how Laura partnered with her care team to adapt, persevere, and keep moving forward.
Dancing to Her Own Tune with Pulmonary Arterial Hypertension ⟩
Learn how Mike collaborated with his care team to make informed decisions that supported his everyday life.
Finding A Treatment Plan That Works and Staying the Course ⟩
Conditions like PAH often reshape family routines and relationships. See how Nicole and Jane adapted, supported each other, and built confidence along the way.
How Family Members Can Help with PAH Care ⟩A little self-care can go a long way—especially when you’re living with pulmonary arterial hypertension.
Living with PAH can be a big adjustment—but taking care of yourself may make a big difference. So, where do you start? This article gives you a wide range of ideas for incorporating self-care into your daily routine.
PAH and Self Care ⟩
Exactly how common is depression among people with PAH? What are the signs to look for and where should you turn if you notice symptoms of depression? Find out what you need to know about depression and PAH in this article.
Depression and PAH ⟩
Living with a rare condition can feel isolating, but finding connection and community can make a meaningful difference. Explore how Karen built a support network that helped her navigate challenges and support others along the way.
Finding the PAH Support You Need ⟩Motivation and insights from others could make a difference in your care.
Gwen’s story shows how clarity, support, and persistence can shape a new path forward. Learn how she made decisions that helped her regain independence and stay active in the roles she loves.
Life with Pulmonary Arterial Hypertension ⟩
Haley’s journey shows how gaining knowledge and trusting your instincts can transform uncertainty into confidence. See how she built a supportive team, embraced self-advocacy, and stepped into a leadership role in her own health.
Becoming Captain of the PAH Team ⟩
Navigating a complex condition can feel overwhelming, especially when communication falls short. Explore how a collaborative, patient-doctor partnership helped Haley feel heard, informed, and active in her care.
Partnering with your PAH Specialist: Shared Decision-Making ⟩Caregivers are the often unsung heroes of PAH. Learn from other caregivers about how to be successful taking care of your loved one and yourself.
Caregiving comes with challenges that can strain both time and energy. Learn how Jane finds balance, seeks support, and stays organized while caring for her daughter.
Finding Balance for Pulmonary Arterial Hypertension Caregivers ⟩
Nayda talks about her role as a caregiver to her husband, Nathan, who is living with pulmonary arterial hypertension (PAH)
Tools for PAH Caregiving ⟩
As a caregiver, it might seem difficult to navigate caring for your loved one while balancing your own needs. We’re here to provide a few tips on how to better care for your loved one and for yourself!
Meeting Your Needs ⟩
Issue #9 of PAH Today magazine from the PAH Initiative is now available and can be downloaded here. In this edition, you’ll hear from people living with PAH, including Haley, who sought more collaborative care and learned to navigate treatment challenges by advocating for herself. You’ll also read Nicole’s story and how her strong bond with her mother, Jane, helps them navigate life with PAH and stay active together. If staying active is on your mind, we’re sharing practical tips to help you build a movement routine that works for you. And for our caregiver readers, Nayda discusses how resources and peer support have given her strength and direction.
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