Living with pulmonary arterial hypertension takes strength, courage, and lots of motivation. The PAH Initiative is here to help with useful information and resources for living with PAH that you can use every day.
Find out which foods and drinks could help or do harm, make lifestyle changes you can commit to, plus exercise videos for people with PAH.
Wondering about the cause of swollen ankles or the connection between fluid retention and salt? Read this article to learn the science behind how sodium and diet affect people with PAH.
PAH and Sodium ⟩
Which foods are good for you? Can certain foods make your PAH worse? The answer may surprise you! Check out this article to find out which foods are better for PAH and which foods you should avoid.
PAH and Diet ⟩
Looking for more information on low-sodium diets? This article offers a handy (and printable) list of PAH-friendly resources to help you plan your meals and make your new PAH diet stick.
Low Sodium and Diets ⟩Hear from other people living with PAH as they tell their stories and share their thoughts, lessons learned, and what inspires them to keep going.
Novelists often split their work at a pivotal moment of change. Nancy sees her life similarly: part one is before her pulmonary arterial hypertension (PAH) diagnosis, and part two begins afterward.
Life with PAH ⟩
How confidence and determination helped Lauren take charge of her PAH.
Taking Charge of Your PAH ⟩
Nathan was never one to sit still, but his life was about to change. How did his proactive approach to life with PAH make a difference?
Being Proactive with PAH ⟩A little self-care can go a long way—especially when you’re living with pulmonary arterial hypertension.
Living with PAH can be a big adjustment—but taking care of yourself may make a big difference. So, where do you start? This article gives you a wide range of ideas for incorporating self-care into your daily routine.
PAH and Self Care ⟩
Exactly how common is depression among people with PAH? What are the signs to look for and where should you turn if you notice symptoms of depression? Find out what you need to know about depression and PAH in this article.
Depression and PAH ⟩
Making meaningful connections with others is an important part of your emotional well-being and overall health, especially when living with a rare disease like PAH. This article shares some simple ways you can find and connect with others like you.
Making Connections ⟩Motivation and insights from others could make a difference in your care.
Building a better relationship with your PAH specialist. We’ve compiled a few questions to consider asking during your next doctor’s visit!
Proactive Questions for your Specialist ⟩
Thekla talks about how she’s proactive with her PAH specialist – discussing her PAH symptoms, setting goals, coming up with a treatment plan, and needing to make adjustments to her treatment plan over time.
Thekla's Story on Treatment Options ⟩
Everyone’s story is unique, especially when you’re living with pulmonary arterial hypertension (PAH). Nathan discusses the challenges of living with PAH, his proactive approach to living with PAH, and how he’s learned to live each day to the fullest.
Nathan's Story on Living Proactively ⟩Caregivers are the often unsung heroes of PAH. Learn from other caregivers about how to be successful taking care of your loved one and yourself.
One of the biggest challenges in goal setting can be finding the motivation to keep striving toward goals. For PAH patients, this is the perfect time for caregivers to lend a hand.
Caregiving for PAH Patients ⟩
Nayda talks about her role as a caregiver to her husband, Nathan, who is living with pulmonary arterial hypertension (PAH)
Caring for the Caregiver ⟩
As a caregiver, it might seem difficult to navigate caring for your loved one while balancing your own needs. We’re here to provide a few tips on how to better care for your loved one and for yourself!
Finding a Balance ⟩
Issue #7 of PAH Today magazine from the PAH Initiative is now available and can be downloaded here. In this edition, Gwen reflects on her journey that started before there were approved treatments, while John shares how he stayed active and worked with his doctor to find the right treatment plan. You’ll also learn about the role imbalances in natural substances have on your PAH and get some inspiration in the kitchen with recipes designed for people living with PAH.
Download current issue (PDF)Don't forget to join the PAH Initiative to be among the first to review new issues of PAH Today directly in your mailbox.
