Living with pulmonary arterial hypertension takes strength, courage, and lots of motivation. The PAH Initiative is here to help with useful information and resources for living with PAH that you can use every day.
Find out which foods and drinks could help or do harm, make lifestyle changes you can commit to, plus exercise videos for people with PAH.
With PAH, taking the first step toward movement can be challenging. Discover how cardiopulmonary rehab helped Gwen and Thekla stay active safely.
Cardiopulmonary Rehab for Pulmonary
Which foods are good for you? Can certain foods make your PAH worse? The answer may surprise you! Check out this article to find out which foods are better for PAH and which foods you should avoid.
PAH and Diet ⟩
Wondering about the cause of swollen ankles or the connection between fluid retention and salt? Read this article to learn the science behind how sodium and diet affect people with PAH.
PAH and Sodium ⟩Hear from other people living with PAH as they tell their stories and share their thoughts, lessons learned, and what inspires them to keep going.
PAH didn't slow Denise's life down; it changed its direction. See how what once felt like a limitation became an invitation to rediscover her inner strength, redefine balance, and trust herself in new ways.
Denise’s Mindset Shift and Learning to Live Fully ⟩
Learn how Mike collaborated with his care team to make informed decisions that supported his everyday life.
Finding A Treatment Plan That Works and Staying the Course ⟩
Conditions like PAH often reshape family routines and relationships. See how Nicole and Jane adapted, supported each other, and built confidence along the way.
How Family Members Can Help with PAH Care ⟩A little self-care can go a long way—especially when you’re living with pulmonary arterial hypertension.
For many people with PAH, supplemental oxygen can feel like a visible sign of illness. See how Nicole transformed her relationship with oxygen into one of movement, independence, and adaptability.
Living Fully with Oxygen ⟩
Supplemental oxygen does more than support the heart; it can also shape how people with PAH feel and function in daily life. Explore what today's oxygen technologies make possible and what to discuss with your doctor.
PAH Oxygen Therapy ⟩
Living with PAH can be a big adjustment—but taking care of yourself may make a big difference. So, where do you start? This article gives you a wide range of ideas for incorporating self-care into your daily routine.
Finding the PAH Support You Need ⟩Motivation and insights from others could make a difference in your care.
Like so many people eventually diagnosed with PAH, Nancy's symptoms went unrecognized for years. See how finally getting the right diagnosis and treatment helped her return to the things she loves and find new appreciation for life's little moments.
Appreciating the Little Moments ⟩
When Denise was diagnosed with PAH, she leaned on her family, her husband, and her community to help her through it. Now that she's feeling better and has regained some control, she's paying it forward.
The Importance of Community ⟩
Navigating a complex condition can feel overwhelming, especially when communication falls short. Explore how a collaborative, patient-doctor partnership helped Haley feel heard, informed, and active in her care.
Partnering with your PAH Specialist: Shared Decision-Making ⟩Caregivers are the often unsung heroes of PAH. Learn from other caregivers about how to be successful taking care of your loved one and yourself.
Caregiving comes with challenges that can strain both time and energy. Learn how Jane finds balance, seeks support, and stays organized while caring for her daughter.
Finding Balance for Pulmonary Arterial Hypertension Caregivers ⟩
Nayda talks about her role as a caregiver to her husband, Nathan, who is living with pulmonary arterial hypertension (PAH)
Tools for PAH Caregiving ⟩
As a caregiver, it might seem difficult to navigate caring for your loved one while balancing your own needs. We’re here to provide a few tips on how to better care for your loved one and for yourself!
Meeting Your Needs ⟩
Issue #10 of PAH Today magazine from the PAH Initiative is now available and can be downloaded here. This issue explores how supplemental oxygen can help you stay active, maintain independence, and continue doing the things you love while living with pulmonary arterial hypertension (PAH). Inside, you'll find inspiring patient stories, expert insights on the latest oxygen therapy advancements, and practical tips for managing daily life and travel with oxygen. Whether you're newly prescribed oxygen or have been using it for years, this issue offers encouragement, helpful resources, and real-world perspectives to support you on your PAH journey.
Download current issue (PDF)Don't forget to join the PAH Initiative to be among the first to review new issues of PAH Today directly in your mailbox.
