[On Screen Text: Reaching Out and Staying Connected. PAHInitiative - Sponsored by United Therapeutics - p Committed toImproving the Lives of Patients.]
[On Screen Text: Denise PAH Initiative Ambassador]
I really feel that a lot of people are saying how isolated theyare and how they want to get out.
[On Screen Text: Karen PAH Initiative Ambassador]
Get on the phone, get on a video chat. You know, invite people toa video meeting, but stay connected.
[On Screen Text: Lauren PAH Initiative Ambassador]
Especially with the PAH community. There's a lot of patients outthere that feel like they're alone already. And on top of this,it's probably very easy to feel very isolated. So, we do our bestto try and reach out in the community.
I'm actually a support group leader and we meet virtually. Andjust to even check in.
You have to find people that know what you're going through. And Imean, it's great to have that wonderful doctor and that wonderfulsupport team.
If you're having a really difficult time and you are a PAH patientthat has not been able to reach out, see what kind of resourcesyour doctor provides.
I have a great nurse. I can email them. I have an app that we workwith and through. In all my medicines and everything we can emaildirectly, or we can Facebook post or anything.
Find hobbies and positive things you love to do. If you love toknit, then join a knitting group. And if you love to paint startpainting.
Do what you can to be mentally clear, whether that's you do apuzzle or you like to go for a bike ride or just anything thatmakes you happy.
Open up those blinds instead of keeping those blinds closed,definitely just bird watch. Just do something. You know, call thatperson, maybe you haven’t talked to in a while.
And it's the most important time to also make sure that you'rereaching out to others as others are for yourself.
[On Screen Text: PAH Initiative - Sponsored by United Therapeutics- Committed to Improving the Lives of Patients. For more resourcesabout PAH, please visit www.PAHInitiative.com]
Living with PAH isn’t easy, but you have a community to support you so you don’t go through this alone. In this short video, Denise, Karen, and Lauren share their thoughts on how to reach out and stay connected.
PAH is a complicated disease that can be difficult to understand. We’ve broken it down for you with easy-to-understand information, simple graphics, and informative videos from a PAH specialist.
What Is PAH?
Learn how Peggy renewed her competitive spirit after her PAH diagnosis and how she won't let an oxygen tank define her.
Competitive Spirit with PAH ⟩
How has knowing their risk status helped Lauren and Karen better understand if their treatment plan is working?
Knowing your PAH Risk Status ⟩
Living with PAH can be a big adjustment and taking care of yourself can make a big difference. But where do you start?
Self-Care and Healthy Living ⟩