Additional Resources and Support
Explore your PAH community
The PAH Initiative wants to help you find PAH experts, reach out to PAH support groups, and connect with the wider PAH community.
United Therapeutics proudly sponsors the PAH Initiative. The company was founded upon a personal commitment to PAH. Learn more about United Therapeutics, our commitment to PAH, and what’s in our pipeline.
PHA envisions a world without pulmonary hypertension. This organization is dedicated to improving the lives of everyone affected by pulmonary hypertension. Through support, advocacy, awareness, education, and research programs, PHA empowers patients, caregivers, families, healthcare providers, and researchers worldwide.
phaware® creates pulmonary hypertension awareness and global engagement on behalf of families, caregivers, and medical professionals affected by PAH and supports innovative research efforts to help find a cure.
Scleroderma is a chronic connective tissue disease. Patients with scleroderma are at high risk of getting PAH. The Scleroderma Foundation supports patients and their families through support programs, peer counseling, raising public awareness, and stimulating research to improve treatment.
Pulmonary Hypertension News is a digital news publication dedicated to offering comprehensive daily news coverage of the science, medicine, and human-interest stories surrounding the effects of the disease, as well as the effort underway to treat and eventually cure it.
Find a PAH expert
Because PAH is rare, not all heart specialists (cardiologists) and lung specialists (pulmonologists) are considered experts in PAH. For this reason, people living with PAH are encouraged to seek out a doctor who specializes in treating PAH.